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203 Posts

Chronic Illness

In this section you will find all articles related to chronic illness, which is a major focus for this website. Topics span from rare diseases to new diagnoses, chronic pain, brain fog, societal issues and more. Articles are a collection of patient perspectives, both my own and others from the chronic illness community.

Digital Health ⸱ Sheryl Chan

Fun & Productive Things to Do on Digital Devices After Knee Surgery (Part 2/5)

Apart from the immense pain and lack of mobility, being stuck in bed after any major surgery can leave you bored to tears. I personally suffered from a spontaneous bilateral patellar tendon rupture due to Lupus, and the steroid therapy that I'm on. Being bed bound for an
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Travel ⸱ Sheryl Chan

Top Tips for Travelling with Chronic Illness & Disability (From a Girl Who Loves to Travel)

Travelling with Chronic Illness and Disability — Why I Do It Anyway Travelling is one of my biggest passions in life, and I'd like to share my top tips for travelling with chronic illness and disability in this post. Whilst we all travel for various reasons and find pleasure
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Disability ⸱ Sheryl Chan

Physiotherapy After Knee Operation (Part 6/6)

Physiotherapy after knee operation is the most crucial part of the recovery process. It needs to be taken seriously, because doing something wrongly, or too early, or too late, can all have devastating long-term impacts on your ability to walk properly again. I was bed bound for months after my
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Disability ⸱ Sheryl Chan

Wound Care & What to Wear After Knee Surgery (Part 5/6)

Shopping for clothes can be fun, but this isn't the case when it comes to deciding what to wear after knee surgery. The options for adaptive clothing are limited, and it is difficult to change your clothes or try them on. Yet, comfortable clothing is crucial, especially in
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Disability ⸱ Sheryl Chan

Resources & Therapies for Pain After Major Knee Surgery (Part 4/6)

I'm not going to lie, but it's going to hurt pretty badly after major knee surgery, or any surgery for that matter. This article is part 4 of 6 in a series that covers resources and therapies for pain after major knee surgery. It is also
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Disability ⸱ Sheryl Chan

Must Haves After Knee Surgery to Stay Comfortable in Bed (Part 3/6)

You’re literally going to live on your bed for the next couple of months after a knee surgery or major surgery, so you’ll want to get as comfortable as it gets. Your butt and back are going to ache, and it’s not very… interesting, to put it
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Disability ⸱ Sheryl Chan

After Surgery Care at Home: Hygiene Resources (Part 2/6)

Let’s face it, after surgery care at home is going to be messy, dirty, and a tad unpleasant. You’re going to need to urinate a few times a day, and poop as well. It’s normal, healthy and human to do so. And you're going to
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Disability ⸱ Sheryl Chan

Knee Surgery Post-Operative Care: Introduction to the Series (Part 1/6)

A knee surgery, or any major surgery, carries with it a certain percentage of risk. There's the general anaesthesia, rare but possible mishaps, unforeseen problems, medication interactions and more. Knee surgery post-operative care and the recovery process will look different for every individual, but there are some resources
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Caregiving ⸱ Sheryl Chan

What's it Like to be a Caregiver for a Chronically Ill Loved One (The Challenges & Rewards)

A Note from A Chronic Voice: To open, I’d like to thank Lucjan for contributing this guest post. I especially love to hear from men within the community, as their voices are pretty rare, yet vital. Lucjan is a caregiver, whose wife is chronically ill with fibromyalgia and endometriosis.
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Personal Development ⸱ Sheryl Chan

What's It Like Going Back to School as an Adult with Disability and Chronic Illness

Going back to school as an adult with disability and chronic illness wasn't something I had in mind - at all. But a lot has happened this year for me. For those who aren’t aware, I suffered a spontaneous bilateral patellar tendon rupture in January, which left
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Disability ⸱ Sheryl Chan

Knee Surgery for Spontaneous Bilateral Patellar Tendon Rupture: Weeks 1 to 6

This article is part of an ongoing series about my Spontaneous Bilateral Patellar Tendon Rupture incident and knee surgery as a patient with Lupus, other chronic diseases and steroid therapy. Each part of the series will be updated and can be referenced below: Follow the Ongoing Spontaneous Bilateral Patellar Tendon
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Disability ⸱ Sheryl Chan

My Recovery Time for Simultaneous Bilateral Patellar Tendon Rupture (With Lupus & Steroid Treatment)

This article is part of a series about my Spontaneous Bilateral Patellar Tendon Rupture incident as a patient with Lupus, other chronic diseases and steroid therapy. Each part of the series will be updated and can be referenced below. In this post, I will share more about my recovery time
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